Is there a current system? Ive seen no evidence of it services in my area...you mean there are some???? 3rd question doesn't apply as Ive had no service other than some chap sending my brother 3 washable kylies. challenges seem to be lack of communication between agencies.and as for any type of support well after 12 years Im still waiting for some,my brother was diagnosed dumped and forgotten,he refuses any respite,won't have "babysitters" and because of my own health issues I can no longer take him out in his wheelchair,he pays a carer to take him coarse fishing out of his attendance allowance once a fortnight,but the novelty of that has worn off so he's housebound and as he wont have carers Im housebound too,whenever I call ss or anyone who's meant to give a damn I just seem to slip through the net and get forgotten or ignored

I'm registered blind with social services, but beyond receiving a white stick and daylight lamp, I get no help (or even contact)at all. All last year, I had to care for my very sick partner, and do everything else as well. The government should be supporting the public, not wasting money on Trident. The Tory spending policies are all backward.

had an horrific time since my illness last year that left me paraplegic- no flow in care system direct payments an absolute nightmare and minefield caused more stress than i needed which caused some depression now budget been taken over by management agency so cannot access my funds to pay for my care budget cut in half without being notified dropping me into financial chaos absolute nightmare

My daughter, age 36 was happy in a residential setting until a member of staff assaulted her and she had to leave her home for safe-guarding reasons. The only available place for her to move to was a supported tenancy with two other ladies, age 79 and 60, who cannot communicate. Sam's needs are not being met and her health has deteriorated significantly. A vacancy has arisen at Sam's dream home, but Lancashire County Council refuse to fund the move because of the difference in the costs. Instead she is rotting away in a totally unsuitable placement. We have been fighting to get her moved for over 12 months. Her emotional and social needs are not met, her physical health deteriorates and her wishes are ignored. There is no alternative places within budget and not likely to appear in the future.

adult care and safeguarding is shocking! quality of care homes and hospitals for dementia patients truly shocking and disgusting. home care seems only option but is unpaid (carers allowance) if you earn over £100 a week!!! how are supposed to live?? government is ignorant to needs of elderly

currently i pay my self employed, tax paying etc carer/pas the sum of £10 per hour. My local council has just undertaken my annual review, cut my hours by 10 % and reduced the hourly rate to £7.35 per hour this is worrying, have now have now well being included in my budget, i need 2 people to take me out, been outside 4 times this year so far. my pa's have now said they will be leaving in september, they cannot afford to work any comments welcome.

I have severe, multiple and complex needs because of spastic quadriplegia Cerebral Palsy and hydrocephalus. In addition to this, I am registered severely sight impaired (blind). I rely on others in all aspects of daily life. I have had assessments where my needs were misinterpreted, and judgement was made about me and those who help me, not just by some social workers and care agency members, but also by doctors who I went to. I made multiple complaints about this and I am glad I did. I am used to having to explain about my disabilities, as the hydrocephalus not visible. Needless to say, it is severe as I have had a VP shunt from the age of 2 weeks old. My glasses also confuse people, because they do not know the severity of my eyesight difficulty. They are very strong and I can only see a very small amount with them. Because I can talk to people and my speech is unaffected by my CP and I have a university degree, people often assume I am more independent than I am, or take my intelligence level to mean I can solve my problems with getting the right support from social services. I am engaged, and my partner and I want to have peace of mind for the future. I am passionate about disability awareness, and am shocked by the lack of knowledge of disabilities and health conditions social services have. It would be great if they could have some basic understanding of disabilities and health conditions and how they affect people before face to face assessments are carried out so that there is no judgement or uncertainty about how to act around people when the assessments are carried out. The assessment process is daunting and worrying enough without this kind of behaviour. I find issues surrounding budget and necessity of care or help are not dealt with professionally during the assessments. Having disabilities, I am already at a disadvantage in general, but requiring the equipment & support I do daily from the moment I wake up til the moment I go to bed every day and at night means what I require is expensive. I realise there are cutbacks, but being told during numerous assessments throughout my life that there is "no money" for what I require is deeply worrying and demoralising. Not just for me, but for those who love me. It is unsettling living in a constant state of worry.

This is a comment about NHS Continuing Health Care CHC and Personal Health Budgets PHB. This health and social care by the NHS. You would have thought this would be better, more caring? You would be very wrong. My severely disabled husband was given CHC in May 2015 and a PHB in September 2015. I am still caring for him although I too am disabled. The whole process has been a nightmare. Our local Clinical Commissioning Group CCG have not followed a single guideline. They are dragging their heels. You may have heard outrageous stories about what some people have used their PHB to buy. Well not on the Fylde coast. He cannot even get the care that he is entitled to. Everyone that comes around, be it Nurses, health officials or charities, all say the same thing. To me they say " do you want respite ". They cannot understand that we want to be together. I just need some help. The latest fiasco is that we have this urgent need and were told that we would have to wait until the manager's leave was over. Well 2 weeks later and she was back yesterday and no contact.

Unpaid cares save the government millions, give them a decent one off payment to say thanks instead of reducing it.

You ask us to contribute "If you have personal experience of receiving care and support". The problem is that most autistic adults lack this experience as it is not offered. The LAs get away with this by claiming autism falls within learning disability services, yet over 50% of us do not have a learning disability. Many are also not on the mental health radar either, so go completely unsupported as a support framework does not exist for us. I was diagnosed 7 years ago, aged 50. I walked out of the diagnosis to a social care system completely lacking knowledge or care about autistic adults of my age. Nothing has ever been offered to me, or to my autistic sister, who has asked for help and been told she doesn't qualify, by an unqualified trainee social worker. So through work, I taught myself about autism and ageing and now I speak at conferences, about supporting ageing autistic people. As far as I'm aware, I am one of only two or three people who does so, as almost every autism research project sets parameters excluding autistic people over 40 years old. No research leads to no facts or stats to inform training or commissioning. So you need to be asking the question, "Do services in your local area exist at all, once you are over 40?"