Access to drugs for ultra-rare diseases

15 Jun 2015, 14:00 - 16:00

On Monday 15 June, the House of Commons organised a digital debate on ‘Access to drugs for ultra-rare diseases’ ahead of a Westminster Hall debate on Tuesday 16 June 2015.

The digital debate was held in partnership with Genetic Alliance UK and took place on Twitter on the hashtag #rddebate.

The public shared their thoughts and experiences and the questions that they would like raised in the Westminster Hall debate. The comments were shared with MPs, including Greg Mulholland MP who led the Westminster Hall debate.

A summary of the digital debate can be found on the House of Commons Storify account.

Watch the Westminster Hall debate

You can watch the Westminster Hall debate on the ‘Access to drugs for ultra-rare diseases’ from 2.30pm on Tuesday 16 June 2015.

Contact for more information.

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