Early day motion 1382

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That this House welcomes the decision by the National Institute for Health and Care Excellence (NICE) to recommend the Duchenne muscular dystrophy treatment, Translarna, for funding by NHS England, as a result of a Managed Access Agreement; notes that Translarna is the first ever approved drug to treat an underlying genetic cause of Duchenne muscular dystrophy; recognises the tireless campaigning by patients and families throughout the NHS England and NICE processes calling for access to Translarna; acknowledges the vital role that Muscular Dystrophy UK and Action Duchenne have played as patient organisation stakeholders during the NICE assessment process; further recognises the role of other charities in pressing for access to Translarna; further notes with concern the announcement by the Scottish Medicines Consortium to recommend that Translarna not be approved for funding by NHS Scotland; and calls on NHS England to shorten implementation from three months so that the drug is available as quickly as possible.

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Total number of signatures: 28

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Showing 28 out of 28

Name Party Constituency Date Signed
Amess, David Conservative Party Southend West 20.04.2016
Betts, Clive Labour Party Sheffield South East 20.04.2016
Blackman, Bob Conservative Party Harrow East 21.04.2016
Bottomley, Peter Conservative Party Worthing West 18.04.2016
Campbell, Ronnie Labour Party Blyth Valley 19.04.2016
Cooper, Rosie Labour Party West Lancashire 26.04.2016
Crausby, David Labour Party Bolton North East 27.04.2016
Cunningham, Jim Labour Party Coventry South 18.04.2016
Durkan, Mark Social Democratic and Labour Party Foyle 18.04.2016
Glindon, Mary Labour Party North Tyneside 18.04.2016
Godsiff, Roger Labour Party Birmingham Hall Green 25.04.2016
Hayes, Helen Labour Party Dulwich and West Norwood 20.04.2016
Hermon, Lady INDEPENDENT North Down 20.04.2016
Hopkins, Kelvin Labour Party Luton North 20.04.2016
Howarth, Gerald Conservative Party Aldershot 28.04.2016
Kinahan, Danny Ulster Unionist Party South Antrim 25.04.2016
Mactaggart, Fiona Labour Party Slough 25.04.2016
McDonnell, Alasdair Social Democratic and Labour Party Belfast South 21.04.2016
Meale, Alan Labour Party Mansfield 25.04.2016
Mearns, Ian Labour Party Gateshead 20.04.2016
Monaghan, Paul Scottish National Party Caithness Sutherland and Easter Ross 25.04.2016
Mulholland, Greg Liberal Democrats Leeds North West 19.04.2016
Ritchie, Margaret Social Democratic and Labour Party South Down 19.04.2016
Shannon, Jim Democratic Unionist Party Strangford 19.04.2016
Sharma, Virendra Labour Party Ealing Southall 26.04.2016
Simpson, David Democratic Unionist Party Upper Bann 20.04.2016
Stephens, Christopher Scottish National Party Glasgow South West 20.04.2016
Streeter, Gary Conservative Party South West Devon 25.04.2016