The Neuro Patience report, published by the Neurological Alliance, presents the findings of an online survey of the experiences of people with neurological conditions in engaging with health and social care. Patient insights can provide useful intelligence to commissioners and service planners when delivering or reviewing service provision, highlighting areas where improvements can be made.
NHS England works to provides tailored national support, enabling local commissioners and providers to drive improvement and ensure services best reflect the needs of individual communities. NHS England also works with patient organisations such as the Neurological Alliance to raise awareness and support improved outcomes for people living with neurological conditions. This includes reflecting on intelligence and insights, such as those provided by the survey report, to drive improvements in care.
NHS England established the National Neurology Advisory Group (NNAG) with the Neurological Alliance, which led the development of a national collaborative clinical leadership model, bringing together key stakeholders, a range of national clinical leaders and patient groups. The NNAG, which is co-chaired by Professor Adrian Williams (who serves as chair for NHS England’s neurosciences Clinical Reference Group), aims to support alignment between neurology improvement programmes in NHS England, arm’s length bodies and system partners; and to guide the strategic development of work to improve outcomes for people living with neurological conditions.