Blood Diseases:Written question - 41134

Q
(Hackney North and Stoke Newington)
Asked on: 24 June 2016
Department of Health
Blood Diseases
Commons
To ask the Secretary of State for Health, what estimate he has made of the proportion of people from black, Asian and minority ethnic communities who have received a diagnosis of (a) sickle cell disease and (b) thalassaemia in each (i) clinical commissioning group area, (ii) trust area and (iii) national sickle cell and thalassaemia centre area; and what proportion of people from such communities were so diagnosed in the most recent year for which figures are available.
A
Answered by: George Freeman
Answered on: 04 July 2016

The National Haemoglobinopathy Registry maintains a database of patients with red cell disorders (mainly sickle cell disease and thalassaemia major) living in the United Kingdom. Detailed information on the number of patients diagnosed with sickle cell disease and thalassaemia, in England, is available from the National Haemoglobinopathy Registry Report 2013/14. This includes a breakdown of patients on the basis ethnicity, commissioning hub and specialist treatment centre.

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