Ehlers-Danlos Syndrome: Diagnosis:Written question - 38845

Asked by Wendy Morton
Asked on: 26 May 2016
Department of Health
Ehlers-Danlos Syndrome: Diagnosis
To ask the Secretary of State for Health, how many cases of Ehlers-Danios Syndrome have been diagnosed in each of the last five years.
Answered by: George Freeman
Answered on: 07 June 2016

These data are not held centrally by the Department.

Ehlers-Danlos Syndrome (EDS) is a complex group of heritable disorders of connective tissue with an estimated prevalence of one in 20,000. As EDS appears in a variety of forms rates of diagnosis can be underestimated.

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