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That this House welcomes and supports the advent of Children's Hospice Week, the UK's awareness and fundraising week for the 49,000 children and young people with life-shortening conditions, their families and the palliative care services that support them; recognises the huge contribution that hospices and children's palliative care charities play in supporting the most vulnerable children and their families; further recognises that, overwhelmingly, the majority of funds to support this vital care is not through the NHS but through generous public donations; notes that whilst statutory funding and support for these children with the most complex conditions is patchy and unsustainable, the number of children and young people with life-shortening conditions is increasing; further notes that clinical commissioning groups (CCGs) and other funders have a limited knowledge of this population and that local authorities are funding fewer and fewer short breaks which provide vital respite for families; and calls on the Government to ensure that children with short lives are not short changed and that adequate long-term funding and support is provided through CCGs and others to ensure a quality of life and a quality of death for these children and young people that befits a good society and puts families first.
Total number of signatures: 50
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