RAISING AWARENESS OF DUCHENNE MUSCULAR DYSTROPHY
- Session: 2013-14
- Date tabled: 02.07.2013
- Primary sponsor:
- Sponsors:
That this House congratulates Craig Walter, who lives in Wakefield and has had Duchenne muscular dystrophy since birth, on his drive to raise money for, and awareness about, the Martin House Children's Hospice and muscular dystrophy campaign; notes that Craig will undertake, with two carers, a journey of 2,366 miles around the UK which will include visiting John O'Groats, Aberystwyth, Land's End and Great Yarmouth, and that he will drive his wheelchair the equivalent distance of a half marathon and that this culminates in a reception in Parliament on 16 July 2013; further notes that his aim is to collect stories from people living with muscular dystrophy about their experiences and the quality of care in their area; and hopes that this will help highlight the issue of inconsistent care for people with muscular dystrophy in the UK.