Early day motion 992

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MUSCULAR DYSTROPHY CAMPAIGN NATIONAL PATIENT SURVEY

That this House welcomes the publication of the Muscular Dystrophy Campaign's 2013 National Patient Survey report State of the Nation which finds that patients with rare diseases are being put at serious risk of misdiagnosis, and fatal cardiac and respiratory problems are going unmonitored; notes the report's findings revealing major delays in receiving vital checkups owing to a complete inconsistency in NHS care and support for people with muscular dystrophy and related neuromuscular conditions; is concerned that this can lead to costly unplanned admissions to hospital which could be avoided; acknowledges the findings of the audit of unplanned emergency admissions led by Professor Michael Hanna; further notes the need for the lead for neuromuscular services to continue in post after April 2013; calls on the Government to ensure that the NHS Commissioning Board implements new NHS guidelines contained in service specification for neuromuscular services; and further calls on the NHS Commissioning Board to support the development of operational delivery networks for neuromuscular services with a view towards reducing costly unplanned emergency admissions.

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Total number of signatures: 40

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Showing 40 out of 40

Name Party Constituency Date Signed
Anderson, David Labour Party Blaydon 30.01.2013
Betts, Clive Labour Party Sheffield South East 27.02.2013
Bottomley, Peter Conservative Party Worthing West 01.02.2013
Brady, Graham Conservative Party Altrincham and Sale West 26.02.2013
Caton, Martin Labour Party Gower 31.01.2013
Champion, Sarah Labour Party Rotherham 11.02.2013
Corbyn, Jeremy Labour Party Islington North 06.02.2013
Crausby, David Labour Party Bolton North East 14.03.2013
Cunningham, Jim Labour Party Coventry South 11.02.2013
Dodds, Nigel Democratic Unionist Party Belfast North 13.02.2013
Durkan, Mark Social Democratic and Labour Party Foyle 04.02.2013
Flynn, Paul Labour Party Newport West 07.02.2013
Francis, Hywel Labour Party Aberavon 05.02.2013
Galloway, George Respect Bradford West 06.02.2013
George, Andrew Liberal Democrats St Ives 30.01.2013
Hancock, Mike Liberal Democrats Portsmouth South 05.02.2013
Hermon, Lady INDEPENDENT North Down 26.02.2013
Hopkins, Kelvin Labour Party Luton North 04.02.2013
Huppert, Julian Liberal Democrats Cambridge 11.02.2013
Lavery, Ian Labour Party Wansbeck 07.02.2013
Leech, John Liberal Democrats Manchester Withington 12.02.2013
Llwyd, Elfyn Plaid Cymru Dwyfor Meirionnydd 05.02.2013
McCabe, Steve Labour Party Birmingham Selly Oak 05.02.2013
McCrea, Dr William Democratic Unionist Party South Antrim 06.02.2013
McDonnell, John Labour Party Hayes and Harlington 05.02.2013
McGovern, Jim Labour Party Dundee West 10.02.2013
Meale, Alan Labour Party Mansfield 31.01.2013
Miller, Andrew Labour Party Ellesmere Port and Neston 11.03.2013
Murphy, Paul Labour Party Torfaen 07.02.2013
Osborne, Sandra Labour Party Ayr Carrick and Cumnock 07.02.2013
Pugh, John Liberal Democrats Southport 07.03.2013
Qureshi, Yasmin Labour Party Bolton South East 27.02.2013
Reckless, Mark Conservative Party Rochester and Strood 07.02.2013
Riordan, Linda Labour Party Halifax 14.02.2013
Rogerson, Dan Liberal Democrats North Cornwall 11.02.2013
Roy, Lindsay Labour Party Glenrothes 12.02.2013
Russell, Bob Liberal Democrats Colchester 30.01.2013
Shannon, Jim Democratic Unionist Party Strangford 05.02.2013
Skinner, Dennis Labour Party Bolsover 12.02.2013
Williams, Mark Liberal Democrats Ceredigion 06.02.2013