Early day motion 914

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RARE DISEASE DAY 2009

That this House acknowledges the second Pan-European Rare Disease Day on 28 February 2009, which successfully highlights rare diseases and the challenges faced by patients, carers, healthcare professionals and policy makers, working to ensure the highest quality of services and available treatments are accessible to often isolated and vulnerable people; notes that there are over 6,000 rare conditions identified, affecting more than 3.5 million people in the UK; further notes that 75 per cent. of those with a rare condition are children and 30 per cent. die before the age of five years; welcomes the newly-established campaign Rare Disease UK; and urges the Government to move forward with the European Commission's Communciation to create a National Plan for rare diseases.

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Total number of signatures: 104

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Showing 104 out of 104

Name Party Constituency Date Signed
Abbott, Diane Labour Party Hackney North and Stoke Newington 26.03.2009
Alexander, Danny Liberal Democrats Inverness Nairn Badenoch and Strathspey 03.03.2009
Ancram, Michael Conservative Party Devizes 19.03.2009
Anderson, David Labour Party Blaydon 09.03.2009
Austin, John Labour Party Erith and Thamesmead 03.03.2009
Baker, Norman Liberal Democrats Lewes 25.03.2009
Baldry, Tony Conservative Party Banbury 17.03.2009
Begg, Anne Labour Party Aberdeen South 02.03.2009
Beith, Alan Liberal Democrats Berwick-Upon-Tweed 05.05.2009
Berry, Roger Labour Party Kingswood 25.03.2009
Bone, Peter Conservative Party Wellingborough 06.05.2009
Borrow, David S Labour Party South Ribble 09.03.2009
Boswell, Tim Conservative Party Daventry 02.03.2009
Bottomley, Peter Conservative Party Worthing West 27.02.2009
Brake, Tom Liberal Democrats Carshalton and Wallington 21.04.2009
Cable, Vincent Liberal Democrats Twickenham 26.02.2009
Campbell, Gregory Democratic Unionist Party Londonderry East 03.03.2009
Campbell, Ronnie Labour Party Blyth Valley 04.03.2009
Caton, Martin Labour Party Gower 03.03.2009
Clarke, Tom Labour Party Coatbridge Chryston and Bellshill 04.03.2009
Cook, Frank Labour Party Stockton North 12.03.2009
Corbyn, Jeremy Labour Party Islington North 03.03.2009
Cryer, Ann Labour Party Keighley 02.03.2009
Cunningham, Jim Labour Party Coventry South 25.03.2009
Curry, David Conservative Party Skipton and Ripon 19.03.2009
Dean, Janet Labour Party Burton 10.03.2009
Devine, Jim Labour Party Livingston 02.03.2009
Dismore, Andrew Labour Party Hendon 27.02.2009
Dobbin, Jim Labour Party Heywood and Middleton 03.03.2009
Dodds, Nigel Democratic Unionist Party Belfast North 04.03.2009
Dowd, Jim Labour Party Lewisham West 12.03.2009
Drew, David Labour Party Stroud 03.03.2009
Durkan, Mark Social Democratic and Labour Party Foyle 26.02.2009
Etherington, Bill Labour Party Sunderland North 23.04.2009
Farron, Tim Liberal Democrats Westmorland and Lonsdale 18.03.2009
Featherstone, Lynne Liberal Democrats Hornsey and Wood Green 29.04.2009
Flynn, Paul Labour Party Newport West 02.03.2009
George, Andrew Liberal Democrats St Ives 02.03.2009
Gerrard, Neil Labour Party Walthamstow 09.03.2009
Godsiff, Roger Labour Party Birmingham Sparkbrook and Small Heath 10.03.2009
Hancock, Mike Liberal Democrats Portsmouth South 03.03.2009
Harris, Evan Liberal Democrats Oxford West and Abingdon 26.02.2009
Harvey, Nick Liberal Democrats North Devon 26.03.2009
Heyes, David Labour Party Ashton under Lyne 03.03.2009
Hoey, Kate Labour Party Vauxhall 19.03.2009
Howells, Kim Labour Party Pontypridd 02.04.2009
Hoyle, Lindsay Labour Party Chorley 02.03.2009
Hunter, Mark Liberal Democrats Cheadle 27.02.2009
Iddon, Brian Labour Party Bolton South East 02.03.2009
Jenkins, Brian Labour Party Tamworth 10.03.2009
Jones, Lynne Labour Party Birmingham Selly Oak 27.02.2009
Kennedy, Charles Liberal Democrats Ross Skye and Lochaber 27.03.2009
Key, Robert Conservative Party Salisbury 18.03.2009
Kramer, Susan Liberal Democrats Richmond Park 10.03.2009
Lamb, Norman Liberal Democrats North Norfolk 21.04.2009
Laws, David Liberal Democrats Yeovil 31.03.2009
Leech, John Liberal Democrats Manchester Withington 03.03.2009
Lepper, David Labour Party Brighton Pavilion 02.03.2009
Linton, Martin Labour Party Battersea 24.03.2009
Lloyd, Tony Labour Party Manchester Central 05.03.2009
MacKay, Andrew Conservative Party Bracknell 11.03.2009
Malins, Humfrey Conservative Party Woking 01.06.2009
Marsden, Gordon Labour Party Blackpool South 18.03.2009
McCafferty, Chris Labour Party Calder Valley 04.03.2009
McCrea, Dr William Democratic Unionist Party South Antrim 04.03.2009
McDonnell, John Labour Party Hayes and Harlington 27.02.2009
Meale, Alan Labour Party Mansfield 02.03.2009
Moffatt, Laura Labour Party Crawley 03.03.2009
Mulholland, Greg Liberal Democrats Leeds North West 06.03.2009
Naysmith, Doug Labour Party Bristol North West 04.03.2009
O'Hara, Edward Labour Party Knowsley South 03.03.2009
Opik, Lembit Liberal Democrats Montgomeryshire 19.03.2009
Ottaway, Richard Conservative Party Croydon South 17.03.2009
Pelling, Andrew INDEPENDENT Croydon Central 30.03.2009
Prentice, Gordon Labour Party Pendle 03.03.2009
Price, Adam Plaid Cymru Carmarthen East and Dinefwr 13.03.2009
Rennie, Willie Liberal Democrats Dunfermline and West Fife 19.03.2009
Riordan, Linda Labour Party Halifax 25.03.2009
Robinson, Iris Democratic Unionist Party Strangford 16.03.2009
Rogerson, Dan Liberal Democrats North Cornwall 04.03.2009
Rowen, Paul Liberal Democrats Rochdale 09.03.2009
Roy, Lindsay Labour Party Glenrothes 11.03.2009
Russell, Bob Liberal Democrats Colchester 26.02.2009
Sanders, Adrian Liberal Democrats Torbay 12.03.2009
Scott, Lee Conservative Party Ilford North 27.02.2009
Simpson, Alan Labour Party Nottingham South 04.03.2009
Smith, Robert Liberal Democrats West Aberdeenshire and Kincardine 23.03.2009
Soames, Nicholas Conservative Party Mid Sussex 25.03.2009
Starkey, Phyllis Labour Party Milton Keynes South West 05.05.2009
Stewart, Ian Labour Party Eccles 12.05.2009
Streeter, Gary Conservative Party South West Devon 18.03.2009
Swinson, Jo Liberal Democrats East Dunbartonshire 22.04.2009
Taylor, Dari Labour Party Stockton South 06.03.2009
Todd, Mark Labour Party South Derbyshire 12.03.2009
Truswell, Paul Labour Party Pudsey 02.03.2009
Turner, Desmond Labour Party Brighton Kemptown 02.03.2009
Vis, Rudi Labour Party Finchley and Golders Green 03.03.2009
Wareing, Robert N Labour Party Liverpool West Derby 02.03.2009
Williams, Betty Labour Party Conwy 09.03.2009
Williams, Mark Liberal Democrats Ceredigion 10.03.2009
Williams, Roger Liberal Democrats Brecon and Radnorshire 19.03.2009
Williams, Stephen Liberal Democrats Bristol West 03.03.2009
Willis, Phil Liberal Democrats Harrogate and Knaresborough 04.03.2009
Willott, Jenny Liberal Democrats Cardiff Central 07.05.2009