BEATING DUCHENNE MUSCULAR DYSTROPHY
- Session: 2008-09
- Date tabled: 16.06.2009
- Primary sponsor:
- Sponsors:
That this House recalls the statement from the Office of the Prime Minister on 31 October 2007 that `the Government fully accepts that everything possible needs to be done to bring an end to the tragic impact Duchenne Muscular Dystrophy has on individuals and their families'; acknowledges that in the intervening time period around 200 young men will have died from this disease; believes that experience from Denmark shows that much better outcomes are possible when resources are focused on supporting those hit by this disease; applauds those clinicians and researchers who, despite financial constraints, have made huge strides in recent years; and calls on the Government to implement the commitment given by the Prime Minister by meeting the clinicians, carers and campaigners involved in the Action Duchenne campaign in order to develop a strategy based on best practice.