Early day motion 1173

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NATIONAL INSTITUTE FOR HEALTH AND CLINICAL EXCELLENCE APPRAISAL OF TREATMENT FOR PULMONARY ARTERIAL HYPERTENSION

That this House expresses its concern at the Appraisal Consultation Document regarding treatment for pulmonary arterial hypertension published by the National Institute for Health and Clinical Excellence (NICE); notes that NICE's recommendation to no longer use intravenous epoprostenol and inhaled iloprost would have a direct impact on existing and future patients with this life threatening disease; further notes that the effective combination, dual and triple therapies which 25 per cent. of patients receive will be withdrawn without an alternative; further notes that there will be no therapies available for the most severely ill patients; acknowledges that NICE currently considers therapies which exceed a cost of £30,000 per quality adjusted life year not to be cost-effective, which is inappropriate in the assessment of rare conditions like pulmonary arterial hypertension; further notes that NICE has not followed the principles laid out in its own position paper when considering very rare conditions; and therefore calls on NICE to carefully consider representations made in response to its preliminary recommendations by stakeholder groups such as the Pulmonary Hypertension Association UK, clinical experts and patient groups, and allow the continued prescribing of effective drug therapies by expert clinicians in the seven designated specialist treatment centres in the UK, in accordance with the consensus document published in March.

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Total number of signatures: 136

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Showing 136 out of 136

Name Party Constituency Date Signed
Abbott, Diane Labour Party Hackney North and Stoke Newington 26.03.2008
Ainger, Nick [R] Labour Party Carmarthen West and Pembrokeshire South 12.03.2008
Alexander, Danny Liberal Democrats Inverness Nairn Badenoch and Strathspey 31.03.2008
Anderson, David Labour Party Blaydon 20.03.2008
Anderson, Janet Labour Party Rossendale and Darwen 19.03.2008
Atkinson, Peter Conservative Party Hexham 26.03.2008
Baker, Norman Liberal Democrats Lewes 21.04.2008
Baldry, Tony Conservative Party Banbury 27.03.2008
Battle, John Labour Party Leeds West 19.03.2008
Bercow, John Conservative Party Buckingham 26.03.2008
Berry, Roger Labour Party Kingswood 27.03.2008
Borrow, David S Labour Party South Ribble 11.06.2008
Bottomley, Peter Conservative Party Worthing West 13.03.2008
Brooke, Annette Liberal Democrats Mid Dorset and North Poole 26.03.2008
Brown, Lyn Labour Party West Ham 31.03.2008
Browne, Jeremy Liberal Democrats Taunton 26.03.2008
Buck, Karen Labour Party Regent's Park and Kensington North 22.04.2008
Burstow, Paul Liberal Democrats Sutton and Cheam 23.04.2008
Cable, Vincent Liberal Democrats Twickenham 27.03.2008
Campbell, Gregory Democratic Unionist Party Londonderry East 19.03.2008
Caton, Martin Labour Party Gower 19.03.2008
Challen, Colin Labour Party Morley and Rothwell 31.03.2008
Chaytor, David Labour Party Bury North 19.03.2008
Clapham, Michael Labour Party Barnsley West and Penistone 18.03.2008
Clark, Katy Labour Party North Ayrshire and Arran 19.03.2008
Clarke, Tom Labour Party Coatbridge Chryston and Bellshill 31.03.2008
Cohen, Harry Labour Party Leyton and Wanstead 13.03.2008
Connarty, Michael Labour Party Linlithgow and East Falkirk 19.03.2008
Cook, Frank Labour Party Stockton North 12.03.2008
Crausby, David Labour Party Bolton North East 20.03.2008
Cryer, Ann Labour Party Keighley 18.03.2008
Cunningham, Jim Labour Party Coventry South 31.03.2008
Curtis-Thomas, Claire Labour Party Crosby 12.05.2008
Davey, Edward Liberal Democrats Kingston and Surbiton 03.04.2008
Dean, Janet Labour Party Burton 02.04.2008
Dismore, Andrew Labour Party Hendon 13.03.2008
Dobbin, Jim Labour Party Heywood and Middleton 24.06.2008
Dodds, Nigel Democratic Unionist Party Belfast North 23.04.2008
Donohoe, Brian H Labour Party Central Ayrshire 17.03.2008
Drew, David Labour Party Stroud 19.03.2008
Durkan, Mark Social Democratic and Labour Party Foyle 12.03.2008
Efford, Clive Labour Party Eltham 20.03.2008
Evans, Nigel Conservative Party Ribble Valley 12.03.2008
Farrelly, Paul Labour Party Newcastle-under-Lyme 31.03.2008
Farron, Tim Liberal Democrats Westmorland and Lonsdale 03.04.2008
Flynn, Paul Labour Party Newport West 18.03.2008
Foster, Don Liberal Democrats Bath 14.05.2008
Foster, Michael Jabez Labour Party Hastings and Rye 25.03.2008
Francis, Hywel Labour Party Aberavon 12.03.2008
George, Andrew Liberal Democrats St Ives 12.03.2008
Gibson, Ian Labour Party Norwich North 31.03.2008
Gidley, Sandra Liberal Democrats Romsey 31.03.2008
Goldsworthy, Julia Liberal Democrats Falmouth and Camborne 21.04.2008
Grogan, John Labour Party Selby 18.03.2008
Hall, Patrick Labour Party Bedford 25.04.2008
Hamilton, David Labour Party Midlothian 01.04.2008
Hancock, Mike Liberal Democrats Portsmouth South 13.03.2008
Harvey, Nick Liberal Democrats North Devon 27.03.2008
Havard, Dai Labour Party Merthyr Tydfil and Rhymney 12.03.2008
Heath, David Liberal Democrats Somerton and Frome 26.03.2008
Hermon, Lady Ulster Unionist Party North Down 21.04.2008
Hodgson, Sharon Labour Party Gateshead East and Washington West 25.03.2008
Hood, Jim Labour Party Lanark and Hamilton East 21.04.2008
Hopkins, Kelvin Labour Party Luton North 13.03.2008
Hughes, Simon Liberal Democrats North Southwark and Bermondsey 26.03.2008
Huhne, Chris Liberal Democrats Eastleigh 21.04.2008
Humble, Joan Labour Party Blackpool North and Fleetwood 24.04.2008
Hunter, Mark Liberal Democrats Cheadle 17.03.2008
Illsley, Eric Labour Party Barnsley Central 25.03.2008
James, Sian C Labour Party Swansea East 02.04.2008
Jenkins, Brian Labour Party Tamworth 27.03.2008
Kawczynski, Daniel Conservative Party Shrewsbury and Atcham 18.03.2008
Keetch, Paul Liberal Democrats Hereford 23.04.2008
Kilfoyle, Peter Labour Party Liverpool Walton 12.03.2008
Kirkbride, Julie Conservative Party Bromsgrove 31.03.2008
Lamb, Norman Liberal Democrats North Norfolk 21.04.2008
Leech, John Liberal Democrats Manchester Withington 26.03.2008
Linton, Martin Labour Party Battersea 01.04.2008
Mackinlay, Andrew Labour Party Thurrock 29.04.2008
Marsden, Gordon Labour Party Blackpool South 19.03.2008
Martlew, Eric Labour Party Carlisle 18.03.2008
Mates, Michael Conservative Party East Hampshire 19.03.2008
McCafferty, Chris Labour Party Calder Valley 19.03.2008
McCrea, Dr William Democratic Unionist Party South Antrim 19.03.2008
McDonnell, Alasdair Social Democratic and Labour Party Belfast South 21.04.2008
McDonnell, John Labour Party Hayes and Harlington 20.03.2008
Miller, Andrew Labour Party Ellesmere Port and Neston 01.04.2008
Moffat, Anne Labour Party East Lothian 06.10.2008
Morgan, Julie Labour Party Cardiff North 28.04.2008
Moss, Malcolm Conservative Party North East Cambridgeshire 20.03.2008
Mulholland, Greg Liberal Democrats Leeds North West 09.06.2008
Mullin, Chris Labour Party Sunderland South 25.03.2008
Newmark, Brooks Conservative Party Braintree 12.03.2008
Oaten, Mark Liberal Democrats Winchester 26.03.2008
Opik, Lembit Liberal Democrats Montgomeryshire 23.06.2008
Penning, Mike Conservative Party Hemel Hempstead 03.04.2008
Pope, Greg Labour Party Hyndburn 19.03.2008
Prentice, Gordon Labour Party Pendle 18.03.2008
Pritchard, Mark Conservative Party The Wrekin 17.03.2008
Pugh, John Liberal Democrats Southport 18.03.2008
Reed, Andy Labour Party Loughborough 02.04.2008
Reid, Alan Liberal Democrats Argyll and Bute 31.03.2008
Robinson, Geoffrey Labour Party Coventry North West 17.06.2008
Robinson, Iris Democratic Unionist Party Strangford 22.04.2008
Ruane, Chris Labour Party Vale of Clwyd 12.03.2008
Ryan, Joan Labour Party Enfield North 21.04.2008
Salter, Martin Labour Party Reading West 06.10.2008
Sharma, Virendra Labour Party Ealing Southall 21.04.2008
Simpson, Alan Labour Party Nottingham South 26.03.2008
Skinner, Dennis Labour Party Bolsover 25.03.2008
Soames, Nicholas Conservative Party Mid Sussex 20.03.2008
Southworth, Helen Labour Party Warrington South 12.03.2008
Spink, Bob Independent Conservative Castle Point 17.03.2008
Stewart, Ian Labour Party Eccles 22.04.2008
Strang, Gavin Labour Party Edinburgh East 01.04.2008
Swinson, Jo Liberal Democrats East Dunbartonshire 21.04.2008
Taylor, David Labour Party North West Leicestershire 14.03.2008
Taylor, Richard INDEPENDENT Wyre Forest 12.03.2008
Teather, Sarah Liberal Democrats Brent East 15.05.2008
Thurso, John Liberal Democrats Caithness Sutherland and Easter Ross 27.03.2008
Truswell, Paul Labour Party Pudsey 01.04.2008
Turner, Desmond Labour Party Brighton Kemptown 20.03.2008
Vis, Rudi Labour Party Finchley and Golders Green 26.03.2008
Walker, Charles Conservative Party Broxbourne 26.03.2008
Walley, Joan Labour Party Stoke-on-Trent North 31.03.2008
Waltho, Lynda Labour Party Stourbridge 27.03.2008
Wareing, Robert N Labour Party Liverpool West Derby 17.03.2008
Widdecombe, Ann Conservative Party Maidstone and the Weald 02.06.2008
Williams, Betty Labour Party Conwy 17.03.2008
Williams, Roger Liberal Democrats Brecon and Radnorshire 25.03.2008
Willis, Phil Liberal Democrats Harrogate and Knaresborough 20.03.2008
Winterton, Ann Conservative Party Congleton 13.03.2008
Winterton, Nicholas Conservative Party Macclesfield 12.03.2008
Wishart, Pete Scottish National Party Perth and North Perthshire 25.03.2008
Wood, Mike Labour Party Batley and Spen 21.04.2008
Younger-Ross, Richard Liberal Democrats Teignbridge 21.04.2008